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This is Life of a Long Hauler, a brand new site by Robert DeRosa that's just getting started.…
My life with Long COVID & more - Robert
Writing about Long COVID, experimental treatment, disability, advocacy, research, and survival.
Experimental Long COVID Treatment Journey
Documenting my treatment protocol in the United States —
including updates, reflections, research context,
practical realities, setbacks, and hope.
Advocacy & Research
Writing and reflections on Long COVID advocacy,
patient experience, RECOVER participation,
policy, media, and the evolving scientific landscape.
Media & Public Writing
A collection of interviews, articles,
public writing, and media coverage
related to Long COVID and disability.
Follow the Journey
Subscribe for ongoing essays, treatment updates,
research reflections, and advocacy writing.
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